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Rare Disease Resources

Finding Help for Your Difficult Journey
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Diseases & Conditions 

Diseases & Conditions Encyclopedia from Discovery Health

Rare Disease Database from National Organization for Rare Diseases (NORD) featuring reports on more than 1,150 diseases.

National Institutes of Health's Office of Rare Disease Research 

Top 10 Rare Diseases 

Rare Diseases Featured in Discovery Health's Mystery Diagnosis 


Rare Disease Organizations 

Index of Organizations related to rare diseases and disorders from NORD 


Educate Yourself 

Discovery Health's Smart Patient Guide 

Visit the Health Insurance Library from our friends at HowStuffWorks.com.

Learn About Clinical Trials 

Visit the Health Centers on DiscoveryHealth.com


Community and Support 

Share your story on our Shout Out Wall 

Join NORD's Support Community on Inspire.com

Tell your story with video 

Tell your story with photos 

Enter Video Contest 


How You Can Help 

Get involved in Rare Disease Day 

Get the Word Out About Rare Disease Day 

Start a Patient Organization 

Help NORD with its Mission

 
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