Q: Had you heard about Lyme Disease before? In your research, did it ever come up as a possible cause?
A: I had heard very little about Lyme Disease pre illness. I had no idea you could get this sick and the disease can be so debilitating long term. My previous understanding was that Lyme Disease was not a major issue and if you had it, 3-4 weeks of oral antibiotics would resolve the disease. This is, unfortunately, misinformation. During my research, Lyme had come up many times (along with Lupus and Multiple Sclerosis). Being that I spend a lot of time outdoors it was the obvious choice to me—I was actually insisting that I in fact had Lyme.
Q: What is your advice for those who are struggling to get their doctors to hear and understand them?
A: My advice is that you must remain proactive and be your own advocate. You know your body best—if you are not feeling right you must seek answers and treatment until the situation is resolved 100 percent. Persistence and tenacity saved my life.
Q: Have you met other Lyme Disease patients since you were diagnosed?
A: I have met many Lyme patients since I was diagnosed. It amazes me how each and every time I mention Lyme Disease, everyone knows someone who has or has had the disease. Lyme Disease is much more widespread than we can possibly imagine—people from all walks of life are affected. Unfortunately no one is immune.
Q: How have you changed as a result of this ordeal?
A: I have gotten very involved in Lyme Disease education and awareness. My family and I have helped more than 15 individuals get diagnosed and treated in the last two years alone. My goal is to take my negative experience and turn it into a positive by helping others. Hopefully by sharing my story, I can help others avoid being misdiagnosed as I had been for 6-plus months, making my treatment a much longer process.
